Chronic and Terminal Illness
New perspectives on caring and carers

Coordinators: Payne Sheila, Ellis-Hill Caroline

Language: English
Cover of the book Chronic and Terminal Illness

Subjects for Chronic and Terminal Illness

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180 p. · 15.6x23.5 cm · Paperback
Most chronically and terminally ill patients are cared for in their own homes by family and friends, rather than in hospitals or hospices. These carers are an invaluable free resource and there is an increasing amount of research into their role and the experiences in caring for the terminally ill, patients with cancer and patients with other chronic diseases. This book provides a critique of the theoretical concept of caring, carers and caregivers. Material is based on empirical evidence from recent studies with adults with acquired chronic illnesses, including terminal illness. The empirical data within the book has been gathered from the perspective of those providing personal, domestic or emotional care to others already known to them by virtue of kinship, co-habitation or friendship, rather than carers organised on a professional or voluntary basis. This new evidence is used to make suggestions about possible ways forward within health and social care practice. Students in the fields of health and social care as well as in social sciences undertaking courses with a health focus, practitioners and researchers in palliative care and all those involved in health services provision for the chronically ill will find this book extremely valuable.
1: Sheila Payne, Caroline Ellis-Hill: Being a carer, 2: Mike Nolan: Positive aspects of caring, 3: Caroline Ellis-Hill: Caring and identity: the experience of spouses in stroke and other chronic neurological conditions, 4: Karen Rose: A longitudinal study of carers providing palliative care, 5: Paula Smith: Who is a carer? Experiences of family caregivers in palliative care, 6: Magi Sque: Being a carer in acute crisis: the situation for relatives of organ donors, 7: Christina Lee: Family Caregiving: A Gender-Based Analysis of Women's Experiences, 8: Frances Sheldon, Pauline Turner, Bee Wee: The Contribution of Carers to Professional Education, 9: Caroline Ellis-Hill, Sheila Payne: The future: interventions and conceptual issues
The primary audience will be students in the fields of health and social care, but the text will also be relevant to students in social sciences undertaking courses with a health focus. The book is written for and edited with a view to ensu
  • Broadens clinical perspectives and suggests new ways forward for care-giving
  • Focuses on the experiences of those who provide personal, domestic or emotional care
  • Explores the perspectives of families, spouses, and friends in a caring situation
  • Challenges the idea that the only salient issues related to caring are burden and carer stress