A Journey towards Patient-Centered Healthcare Quality, 1st ed. 2020
Patients, Families and Caregivers, Voices of Transformation

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Language: English

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113 p. · 15.5x23.5 cm · Paperback
This book provides valuable insight into emerging trends in healthcare delivery; patient, family and caregiver engagement and the intersection of the two. It is unique in that it not only incorporates patient?s voice but provides context in the application of patients? families and caregivers in healthcare transformation and the future of healthcare models. It is suited toward not only promoting empathy toward patients but also challenging the reader to learn and think about the future of healthcare and the value of patient?s voice in policy making and decisions about healthcare. It provides valuable information on quality improvement, consumer experience and emerging careers in this area with practical information and interventions.

Nurses and other members of the care team play a critical role in the evolving models of care and must stay abreast of emerging trend to ensure that patients? needs are met while contributing to meeting the quality and economic goals of the organizations and care settings in which they work. This book will help to ensure that they remain abreast of changing trends in quality improvement, quality measurement, cost, health information technology and patient and family engagement so that they are in a position to lead their teams and organizations.

Direct accounts from patients, family and caregivers who want their ?voices? heard are incorporated throughout the book.


Chapter 1. Voices of Patients, Families, and Caregivers – Dialogue 1

a.       Patient Submitted Accounts of Care


Chapter 2. Introduction to Quality Improvement

a.       Evolution of Quality Improvement

b.      Tools for Nurses and Health Professionals in Quality Improvement

c.       Trends in Patient Safety


Chapter 3. Introduction to Patient Engagement in Healthcare

a.       Evolution of Patient Engagement

b.      Current Day Challenges for Patient Engagement

c.       Culture and Healthcare Disparities in Patient Engagement


Chapter 4. Considerations for Family and Caregivers

a.       Challenges for Families and Caregivers

b.      Engaging Families and Caregivers


Chapter 5. Considerations for Special Settings

Guest Author Vignettes for this Chapter –

Carolyn Harris, RN, MSN, JD, Howard University, Assistant Professor

Angela Wheeler, RN, BSN, Critical Care Coordinator, Doctors Hospital, Washington DC

Regina Cox, RN, Critical Care Nurse


a.       Intensive Care 

b.      Acute Care

c.       Ambulatory Care

d.      Post-Acute Care

e.      Hospice


Chapter 6. Voices of Patients, Families, and Caregivers – Dialogue 2

a.       Patient Submitted Accounts of Care


Chapter 7. Quality Measures for Patient, Family, and Caregiver Engagement

a.       Patient Activation Measures

b.      Patient Reported Outcome Measures

c.       Narrative Reporting of Experience

d.      Measurement Tools available in the Federal and Commercial Sector

e.      Public Reporting

f.        What’s on the Horizon


Chapter 8. Data for Patient, Family, and Caregiver

a.       Commercial Tools for Patients and Families

b.      Government and Publicly Available Data

c.       Data Privacy and Protection

d.      Advances in Exchange of Patient Data

e.      Electronic Health Records and Quality

f.        Decision Support Tools


Chapter 9. Innovative Practices in Patient, Family, and Caregiver Engagement

a.       Patient Advisory Committees

b.      Value-Based Design Benefit Packages

c.       Integrated Care Teams

d.      Best Practices in Quality and Patient, Family and Caregiver Engagement


Chapter 10. Career Opportunities for Nurses in Patient, Family, and Caregiver 

Team-Based Care Leaders

a.       Patient Experience Officers

b.      Quality Improvement Professionals

c.       Quality Certifications and Examinations


Chapter 11. Voices of Patients, Families, and Caregivers – Dialogue 3

a.       Patient Submitted Accounts of Care


Chapter 12. Closing Thoughts from the Author

Jean D. Moody-Williams, RN, MPP, enjoys a long history of improving quality, safety and value in healthcare. Starting as a registered nurse, she gained clinical experience that informed her approaches in several policy positions at the private, state and federal levels. She is currently the Deputy Director of the Center for Clinical Standards and Quality, Centers for Medicare & Medicaid Services, United States Department of Health and Human Services. She is a part of a leadership team that provides national direction on policy activities for Quality Improvement, Survey and Certification, Quality Measurement, Coverage and Analysis, Learning and Action Innovations Models and many of the country’s Value Based Purchasing programs including the new Medicare Quality Payment Program (QPP). This program fundamental changes clinician reimbursement for clinical care.  

Prior to joining CMS, Ms. Moody-Williams served as an executive at a number of entities working to improve care for patients and families including, the Maryland Health Care Commission (MHCC), the National Resource Center for Health Policy and Strategies, Quality Improvement Organizations and a health care system in Dallas.

She is a recent recipient of the Samuel J. Heyman Service to America Medal awarded by the Partnership for Public Service and was recognized as the Federal Employee of the Year. Ms. Moody-Williams is also the recipient of the 2016 President of the United States Meritorious Rank Award and the 2018 President’s Distinguished Service Award. These awards are the highest given to Senior Executives demonstrating unparalleled leadership skills and a strong dedication to achieving tangible results. She is the author of the book, Transitions, Trust and Triumph: A Daily Devotion for Caregivers. She received her Bachelors of Science in Nursing from Hampton University and a Masters of Public Policy and Management from the Univer

Provides an overview of the future direction of healthcare transformation using new healthcare value based care systems that integrate cost, quality and emerging models of care

Offers a discussion on quality measurement for nurses and other healthcare professionals

Brings an overview of emerging trends in incorporating patients, families and caregivers in healthcare decision making making from the bedside to the boardroom

Showcase first-hand “voices” from patients, family and caregivers and their message to healthcare professionals

Discusses emerging careers in consumer experience in healthcare