Neonatal Palliative Care for Nurses, 1st ed. 2020
Langue : Anglais
Coordonnateurs : Mancini Alexandra, Price Jayne, Kerr-Elliott Tara
This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident.
This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents? experiences of what they consider helpful or not so helpful are interwoven throughout the chapter.
There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals.
As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.
Foreword.- Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care.- Chapter 1. Introduction to Neonatal Palliative Care.- Chapter 2. Exploring the Concept on Neonatal Palliative Care.- Chapter 3. Support for Staff: Building Resilience in Nurses.- Chapter 4. The Importance of Effective Communication on the Neonatal Unit.- Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family.- Chapter 6. Ethical Concepts in Neonatal Palliative Care.- Chapter 7. Legal Issues in Neonatal Palliative Care.- Chapter 8. The Principles of Genetics within Neonatal Palliative Care.- Chapter 9. Antenatal.- Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background.- Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project.- Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse.- Chapter 13. Advance Care Planning.- Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care.- Chapter 15. Continuing Emotional and Practical Support for the Whole Family.- Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care.- Chapter 17. Collaboration between Neonatal Units and Children’s Hospices – Exploring Opportunities for Potentially Improving Care and Offering Choices.- Chapter 18. Interdisciplinary Working in Neonatal Palliative Care.- Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice.- Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination.- Part II. Achieving Quality in Neonatal Palliative Care Internationally.- Chapter 21. Introduction.- Chapter 22. Australia.- Chapter 23. Kuwait.- Chapter 24. India.- Chapter 25. Malaysia.- Chapter 26. South Africa.- Chapter 27. Ireland.- Chapter 28. The Netherlands.- Chapter 29. Germany.- Chapter 30. Singapore.- Chapter 31. Ukraine.- Chapter 32. Argentina.- Chapter 33. Italy.- Chapter 34. Scotland.- Chapter 35. France.- Support Organisation.- Index.
Alexandra Mancini (Smith) is a neonatal nurse with over 25 years experience and is the Pan London Lead Nurse for Neonatal Palliative Care, the first regional post of its kind. This is a unique post focusing on developing the training and education of staff across the London region and the development of a neonatal palliative care service. Prior to this, Alex was the Neonatal Matron at Chelsea and Westminster Hospital including providing practical and emotional support for families and staff, and has been instrumental in developing local and national guidelines, including robust complex and palliative care pathways.
Alex is lead author for the UK national document ‘Practical guidance for the management of palliative care on neonatal units’ published in 2014. Alex has published widely, including co-authoring book chapters and presents frequently both nationally and internationally. She has held posts as an invited expert member of the Riverside ResearchEthics Committee, Clinical Ethics & Advisory Group of a Central London Hospital and sits on the ICPCN’s (International Children’s Palliative Care Network) Expert Advisory Group on Perinatal and Neonatal Palliative Care. Alex is a guest reviewer for British Medical Journal (BMJ) and the Journal of Neonatal Nursing (JNN).
For the last ten years, Alex has developed the National Neonatal Palliative and End of Life Care conference in collaboration with Child Bereavement UK (CBUK) and she is a facilitator for CBUK’s national educational workshops. In 2016, Alex led the development of an online learning module ‘Perinatal Palliative Care’ designed for the Royal College of Midwives, this online module is also available on the ICPCN e learning website.
Building on her educational work over previous years, Alex is passionate about raising awareness on neonatal palliative care, by educating professionals across the UK and internationally, in a variety of settings, i
Offers the very first textbook for nursing neonatal palliative care edited by nurses for nurses with an international perspective Written by international and authoritative neonatal palliative care experts Shares experiences of parental involvement throughout the book through case studies and parental quotes Brings neonatal care and palliative care specialties together from a nursing perspective
Date de parution : 08-2021
Ouvrage de 413 p.
17.8x25.4 cm
Date de parution : 01-2020
Ouvrage de 413 p.
17.8x25.4 cm
Thèmes de Neonatal Palliative Care for Nurses :
Mots-clés :
Parents; Infants; Support; Professionals; Family centred; Complex care; Bereavement; Hospice; Resilience
© 2024 LAVOISIER S.A.S.
Ces ouvrages sont susceptibles de vous intéresser
Neonatal Intensive Care Nursing 172,36 €
Pediatric Palliative Care 49,02 €
Essential Neonatal Medicine 57,90 €