Genomics and Society Ethical, Legal, Cultural and Socioeconomic Implications
Coordonnateurs : Kumar Dhavendra, Chadwick Ruth
Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.
The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.
Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.
2. Personal Genomics and its Sociotechnical Transformations
3. Genetics, Genomics and Society: Challenges and Choices
4. Genomics and patient empowerment
5. Ethical issues in Health and Social Genomics
6. Health economic perspectives of genomics
7. Legal aspects of health applications of genomics
8. Genomics, Patents and Human Rights
9. Teaching genetics and genomics for social and lay professionals
10. Engaging and empowering public and professionals in genomics
11. The ‘life costs’ of living with rare genetic diseases
12. The bioeconomy, genomics and Society
13. Socio-economic outcomes of genomics in the developing world
14. Roles of genomics in addressing global food security
15. The integration of genomics in the traditional Indian medical practice of Ayurveda
17. Genomics and Traditional Chinese Medicine
18. Human genetics and genomics and the socio-cultural beliefs and practices in South Africa
19. Genomics and Spirituality
20. The socio-demographic and economic correlates of consanguineous marriages in highly consanguineous populations
21. The international law and regulation of medical genetics and genomics
Genome researchers, healthcare workers, and applied social scientists interested in bioethics, psychology, sociology, anthropology, history, philosophy, law, economics, health services research, and related disciplines
Professor Dhavendra Kumar is a Visiting Professor, Genomic Policy Unit, Faculty of Life Sciences and Education, The University of South Wales and Consultant in Clinical Genetics at the University Hospital of Wales, Institute of Medical Genetics, Cardiff University, Cardiff, United Kingdom. He is one of the Consultants for the All Wales Medical Genetics Service and the lead Clinician for Clinical Cardiovascular Genetics. After qualifying in Medicine from the King George’s Medical College, University of Lucknow, India, he completed postgraduate training in Pediatrics with an MD. Since 1980 he has pursued a career in Medical Genetics in the UK. In 1990 he became a Diplomate of the American Board of Medical Genetics. He is a Fellow of the American College of Medical Genetics (FACMG) and as well as Royal Colleges of Physicians (FRCP-London and FRCP-Ireland) and Pediatrics and Child Health (FRCPCH-UK).
In 2015, he was conferred with the higher degree of DSc by his Alma Mater, King George’s Medical University, Lucknow (UP, India) based on his life-time contributions and achievements to genetic and genomic applications in medicine and health.
Ruth Chadwick is Distinguished Research Professor and Director of the ESRC (Economic and Social Sciences Research Council) Centre for Economic and Social Aspects of Genomics (Cesagen), at Cardiff University, UK and Link Chair between Cardiff Law School and the School of English, Communication and Philosophy (ENCAP). Professor Chadwick has coordinated a number of projects funded by the European Commission, including the EUROSCREEN proj
- Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011
- Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system
- Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more
Date de parution : 11-2015
Ouvrage de 438 p.
19x23.3 cm
Thèmes de Genomics and Society :
Mots-clés :
<; P>; Genetics; genomics; ELSI; bioethics; genetic patent; social genetics; bioeconomy; biosociety; health economy; health economist; consent; confidentiality; rights; regulation; legality<; /P>
